For the first time in almost three months I am sitting down at my computer with the intention to write. I took a break to regroup, refocus, and really, to just breath. I was certain I would come back in a week and pick up where I left off, it seemed as I got more encouragement and praise that I had more to say, until I had nothing to say.
I’ve thought about writing a lot, thought about jumping on my computer and telling more of my story and each time I thought about it, I felt weighed down by the idea. My day to day life was too heavy and I couldn’t comprehend using my brain for anything other than binging on Netflix.
Being a caregiver of someone recovering from a bone marrow transplant is so much different than I had anticipated. I assumed it would be similar to being the caregiver of someone going through chemotherapy or radiation: difficult, frustrating, scary, but ultimately, bearable. A bone marrow transplant is, quite literally, a whole different beast. My can-do attitude and desire to take care of everything were irrelevant and those exact things sent me deeper into a space I didn’t know how to navigate.
Anxiety, depression, trauma, grief, catastrophizing, anger, loneliness, guilt: all of the words that have been brought up in my sessions with my therapist since Justin has come home. I had the hardest time understanding that I was grieving, mostly for the life that we had once considered “normal”. There was a new, unpredictable, normal that I couldn’t get a grasp on and it threw me for a loop.
I wish I could describe it to you, I wish I had words of wisdom for you, I wish there was something I could do to keep anyone else from ever feeling the way that I have over the last five months, but as I am learning, I have no control. At all. How disappointing.
I spent many days wondering how I would start writing again. How would I come back? Do I take a deep dive into my experiences over the last few months? Do I just skip over it and talk about all of the things that have gotten me through? Do I just pretend the three months never happened at all? What is the best way to try and regain some of your “normal”? I was apprehensive and insecure. So, here I am, unpolished, raw, and still trying to figure it all out. I suppose that’s all I can ask for at this point.
My world was flipped upside down and I’m still trying to get everything off of the ceiling. It will take some time, and every once and a while something will float back up, but progress is being made on both fronts: Justin’s health and my mental health. For now, we’re just taking it one day at a time.